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Rachel P

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Rachel P - Page Text Content

BC: The End

FC: By: Rachel Parrilla | The Genetic Disorder that Changed My Life

1: Living with dwarfism can be a stressful thing to deal with sometimes. Other times, I'm able to live a normal life like some of my friends at school.

2: Some say our house is different from theirs,, and I can agree for certain reasons. For example, my parents have recently installed a new light switch that has an extension string so it's easier for me to reach. We also have lower handles on our stairways, and instead of having a door knob, we have levers. Our furniture may also look a bit different, but it just

3: makes it much easier for me to live a normal lifestyle at home. Other than that, we're just you're average family.

4: My mom tried talking to my guidance counselers and my teachers about my disorder but my classmates continued to alienate and laugh at me. Now I'm attending a special school and we're all different. Everyone is so welcoming and warm. It's a lot easier to learn at my new school.

6: All things grow better with love. | Actually dealing with the disorder itself is difficult at any age. When I was first diagnosed with dwarfism, my parents were heart broken. At first they started to notice that some of my body parts were smaller than usual. Then they took me to the doctor and they said that I may suffer from disproportionate dwarfism which inhibits bone growth. My parents were afraid , and even though they knew of this disorder, they had no idea what they were in for.

7: Fortunately, I get to live a normal life, expectancy, just like everyone else, but my parents have to spend a lot of money because the specific tests, therapies, and other necessities.

9: As a family, we've had a few discussions about getting treated, there are a few ways to get treated like limb lengthening, hormone therapy, and other surgical therapies. Not only are they expensive and time consuming, but they are also scary. But thanks to support groups and fundraisers that have been so kind and supportive of us. We couldn't have made it this far without them.

11: Sources: www.healthofchildren.com/D/Dwarfism.html www.medterms.com/script/main/art.asp?articlekey=9730 www.kumc.edu/gec/support/dwarfism www.education.com/reference/article/dwarfism www.cnn.com/health/library/dwarfism/DS01012.html

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  • By: Rachel P.
  • Joined: about 9 years ago
  • Published Mixbooks: 1
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  • Title: Rachel P
  • The genetic disorder that has changed my life.
  • Tags: None
  • Published: about 9 years ago