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Dr Devinsky

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Dr Devinsky - Page Text Content

S: MY LIFE by Halle Marshall

FC: MY LIFE By Halle Marshall | Tribute to Dr. Orrin Devinsky & Dr. Howard Weiner

1: I was born on March 10, 2010. It was such an exciting time for me; however, everyone seemed to be really sad around me. I overheard people discussing a genetic disorder that I have called Tuberous Sclerosis. They said I had tumors in my head and my heart. I didn't know what all the fuss was about...I felt just fine and was looking forward to enjoying the world!

2: A few weeks after I was born, we met Dr. Orrin Devinsky. I learned that he was going to help me get better...better from what... I still wasn't sure, I felt just fine.

3: In July, 2010, I started having this annoying twitch in my arm. Dr. Devinsky made me go to the hospital and found some medicine that helped it go away.

4: This page should be filled with pictures from our summer vacation (August 2010). Unfortunately, this is when I started having seizures and wound up in the hospital for two weeks. I did get to take a helicopter and ambulance ride though!!

5: My two-week visit in August was followed with multiple weekly visits to the hospital since my seizures were not responding to medications. Dr. Devinsky's commitment and dedication to my case was extraordinary. But most of all, his true heartfelt compassion and tireless devotion during this period of my life, goes beyond words.

6: It was at this time that Dr. Devinsky said that I should go for surgery. I heard the doctors talking about a big lump in my head and how I'd feel better if they got it out. I was then introduced to Dr. Howard Weiner. I knew from the moment we met that he was going to be my savior. You see, my name is Halle, as I was named after my Grampy, Howard. Dr. Weiner was going to make me all better... I just knew it!

7: February 17, 2011 It was my big day! We all had been waiting for this day for months as I continued to have 10-30 seizures daily.

8: I felt so much better after Dr. Weiner got that thing out of my head --- Dr. Weiner, you are my hero!! | I didn't even mind looking like a Teletubbie with this crazy wrap on my head!

9: My giraffe stayed close by my side through my hospital visit. I tried to get lots of rest and took all my medicine.

10: I was back home in ten days. Daddy and brother, Zach, made me a little surprise party. I was so happy to be home and feeling so much better!!

11: I have been getting better and better... | I had my first birthday (and now I'm almost two!!) | And my first trip on an airplane to Florida!

12: And guess what... I am now like any other kid!! I can ride my trike... | root for the Giants...walk...and talk (even though most people can't understand me just yet).

13: I love to play and be with my Mommy, Daddy and big brother Zach!

14: But most of all...I am the happiest little girl in the world and owe it all to you!! We are eternally grateful!!

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  • By: Laurie M.
  • Joined: about 8 years ago
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  • Title: Dr Devinsky
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  • Published: over 6 years ago